As I sat explaining to Alycia’s mother and father why making the move to one of the top 5 rated cancer hospitals in the country, UCSF, was the best choice for Ella’s treatment, I suddenly realized that I am alone in this fight. I have no family supporting me right now, they have all since [...]
Day 63 of Ella’s coma. We have just moved from the Kaiser in Oakland, where Ella had her initial surgery and two months of follow-up care, to UCSF where she will undergo her radiation treatment. Kaiser in Oakland is basically two buildings, one for the hospital and the other for the doctor’s offices and admin. [...]
More people in Sonoma County and beyond, know more about Ella’s cancer then they do about who this little kid is. I thought it only fair to accurately describe my incredible daughter, so that while you are falling in love with her cuteness (and she’s got the cuteness) you can also feel completely justified in [...]
Boy, just when I was three steps past my breaking point and on my way into the nut-house, today we received great news on Ella’s condition. The cancer has not spread into her spine or any other parts of her body. They did one last MRI as we are preparing for radiation to start November [...]
I miss you Ella Velouria. I do not want to live in this world without you. I do not want to continue pretending to find joy, lying when people ask me how I’m doing. I’m not doing fine, I’m not doing ok, I’m doing the worst ever. Ella may still have cancer growing in her [...]
In a little over a week Ella will begin her radiation treatment. If you’ve read the previous blog entry then you are aware that this treatment will not be as severe as we were lead to believe. It will include radiation at the tumor site only, to ensure that any remaining microscopic cells, are destroyed. [...]
I don’t want to give it any, not one second! But right now I am angry, Alycia is angry, our friends and family are angry and you are about to be too. I posted the last blog two days ago ,although we have known now for 8 days, that Ella will need added radiation treatment. [...]
As of right now Ella is stable. She is still in a coma, but her seizures are under control and her vital signs are all good. Tomorrow she goes back in for surgery to have an internal shunt put in. This is a small tube that will connect from the top of her head, under [...]
Your donations, your support, your kind words, keep us positive and able to stay focused on Ella and not absurd things like bills. I will be posting a more detailed blog on Ella’s current condition, tonight. For now let me say to each one of you whom have been there for our family, we truly [...]
