I’m a stranger but I want to lend you my support, because I’m disappointed in the responses you’ve gotten to this blog. This is your blog and your pain. Even if these people don’t agree with what you’ve said, I would hope they would realize that you’re suffering and antagonizing you is just going to make life harder. If I were you, I would have been furious at that comment too. But you vented on your blog, which is understandable, she apologized, you accepted the apology, and that’s that. It seems to me the only reason someone would suggest you delete it is so that they can feel better, not you. I’m not trying to be mean to anyone, I just want you to know that I think you’re right, in hopes that it will make you feel a tiny bit better.

I’ve been following your blog since you started it. I just happened upon it and now it’s bookmarked. I’m not a religious person either, but I keep hoping for good news when I open it. Ella is so adorable, and I love that she’s a little scientist. She seems like she’s a fun kid to be around. I hope she gets better soon, and I look forward to hearing about it on your blog.

Sincerely,
Tiffany

I am truly happy for you and your daughter, I’m so glad that science and modern medicine could give her the chance to live a productive life. What if I say I’m also hoping that modern science and one of the best oncology and neurology teams in the country, can save my daughter Ella, would that be too negative for ya or is that ok with you? Can I write that? I’m not mending fences with anyone, as you saw, I posted the truth about Cathi’s remarks and she quickly apologized. Well, quickly-it did take 5 days and a public blog read by her friends and family-but hey, some of us need time to get our thoughts together, I understand that.

I will continue to use this forum to update my extremely supportive friends, complete strangers-with overwhelming amounts of compassion, and anyone who gives a shit about my daughter. I will not censor my feelings, omit the harsh truth, or hold back because it may offend someone totally detached from my life and my reality.

I have suggested to Cathi and Mike that they set up another website, for donations, or rosy blogs about hope, or whatever they want. No one is forcing anyone to come read my words about my life. I don’t need money, or criticism or a hot meal or a good nights sleep.

I just need my daughter back.

Glen.

It will take time for the sting of your words to subside.

Let’s hope we never have to have more of these ridiculous issues in the future and we can all just come together for Ella who is in a coma with cancer in her brain, defenseless and fighting for her life. Let’s give her the support she deserves, and hopefully with that and medical science, we will see her recover. I also suspect Mike wrote your comment, I have never known you to express yourself in such a manner.

Nonetheless, I acknowledge this apology and wish to move on now.

Glen.

First of all I want to apologize to you for my comment. I was feeling Aly’s fear and reluctance of leaving Kaiser for an unknown start date of treatment at UCSF. Delaying it for possibly 2-3 weeks and the possibility of a recurrence scared me. Now that Ella has made the move I am optimistic in her care and treatment. I appreciate your research in making this decision.

Cathi