Comments on: Waiting.

By: Theresa

Theresa — Wed, 10 Nov 2010 19:35:07 +0000

Thank you for the update. I’m so happy that you rejoice in her eyes being open as I can only imagine I would too! Prayers are still being lifted up. Lots of love to Ella and your whole family!

By: admin

admin — Mon, 08 Nov 2010 23:47:47 +0000

No Ella is not fully awake, she is in a semi-conscious state. When we say her eyes are open, we don’t mean she is moving her eyes around tracking things. She is just staring off. The doctors are weening her off of her anti-seizure medications which are sedatives that really snow her. We don’t have a good grasp of her neurological condition because these drugs are masking it. In about two months once all of the drugs are out of her system, they can reassess her condition and give us a more definitive answer as to how much she will recover. Some people never recover past this semi-conscious state, whereas it also can be the final stage of her coming out of the coma. We just don’t know, no one does. But seeing her with her eyes open does my heart good, and it gives us real hope that she will be back to us soon. I can’t wait to start buying her presents, man that will be fun!! If there is a girl in this world that deserves a ton of presents it is surely is Ella Velouria Stewart.

By: Theresa

Theresa — Mon, 08 Nov 2010 22:44:59 +0000

Wait for me! I’m so confused. Is Ella awake? Can you give us more info on her status? Ignore the jack-asses and tell me more about Ella! Please???? Deb said that Ella opened her eyes for story time. What does that mean??? I’m sorry I’m so behind.

By: Melinda

Melinda — Thu, 04 Nov 2010 22:47:23 +0000

Wow, I dont even know what to say other than incredible….you are an incredible woman to be able to go through something like this an even be able to talk. I cried reading this story and I’ve never even met you or your beautiful daughter. The power of prayer is amazing and I will keep you and your family in my prayers….because miracles do happen I hope that you can find a little bit of comfort in knowing that ella’s story is touching so many lives and so many people love her and yet may not even know her. I’m truly sorry that anyone would think its okay to feel any different, and when people make comments like that, all I can say is think of ella’s precious face smiling at you … You do everything in life for her…smile because when she does wake up, the first thing she is going to do is smile at you

By: Nicholas

Nicholas — Thu, 04 Nov 2010 02:01:27 +0000

Like so many people on this blog have said, keep on expressing yourself! Don’t even waste your time on arrogant, heartless, inimical assholes. Unfortunately, as you already know, this world is full of them. Stay strong. I can’t even begin to imagine what you are going through. It’s something all of us parents try to not think about and hope that it never happens to us. I know I keep telling you this, but I’m here for you. If Deb is with Ella and you are in Sebastopol and need someone to get you through the night, CALL ME. You can call me anytime, day or night. Of course I can’t relate, but I can always listen. I love you guys.

By: Nicole

Nicole — Thu, 04 Nov 2010 00:22:36 +0000

That person has some problem that is not you and has nothing to do with you and its sad and offensive (and probably a sign of mental illness, seriously) that they felt the need to put any more stress on you, when they should be looking into themselves for why they would do such a thing.

My mom was on a ventilator and I slept in her room at the ICU for about two months before she could come home (she had a completely different health issue), and its incredibly isolating. I blogged about it on facebook at the time because it was a necessary way to reach out, feel community and support when physically I couldn’t be around friends because I needed to be there to support and advocate for her. And its traumatizing, the sounds, the suctioning, constantly living on the edge not knowing whats next except that the situation is critical, constantly critical. And as advanced as medicine is, its still very fallible plastic tubes that keep things going; there is a real irony to this. Its necessary to write about it all and process it with others. I’m not sure I would have had much energy to deal with haters, but somehow it was there when it came to advocating for better care. Save your energy for that; ignore the haters, they just have no idea and have issues that hide their better humanity.
And If it helps I think she can probably hear you at least on a subconscious level.

By: Kathleen

Kathleen — Wed, 03 Nov 2010 21:33:08 +0000

we support you. you do what you need to do, write what you need to write, say what you need to say, feel what you need to feel. don’t sugar coat. whatever you need to make it through this horrible time. this is your outlet. we are grateful that you are willing to share and keep us updated on Ella. you are brave and a wonderful father. We care. We understand. Ella will understand. Love, All of Ella’s friends at Live Oak

By: Nica

Nica — Wed, 03 Nov 2010 21:05:23 +0000

Please don’t stop being honest Glen. Don’t stop making all of us come to tears with your heartbreaking words. This is reality, and it hurts more than it should. I think to ask you to hold yourself back is a disservice to Ella. She loves you more than anything for being who you are. I can’t imagine the toll 3 months of not being able to speak to Ella, to hear her say your name, would be beyond maddening. Please continue to use this blog as your outlet and know that you have people who truly care about you and Ella. When Ella does wake up, she will realize she has the most supportive Father, Mother, and big red Her love for you Glen is what is keeping her going, so don’t let that person allow you to falter for even one minute! I love you and Ella and think of you all everyday. The person who wrote that email to you doesn’t know what love is; to truly care about someone, and to watch them wither away. There are those of us who have had to watch that, and we have a glimmer of the pain you suffer, and will never blame you for it or judge you because of it. Smash walls, break things, punch people in the face, whatever! I love you and Ella relentlessly! Nica

By: Sara

Sara — Wed, 03 Nov 2010 19:47:14 +0000

Dear Glen, My heartaches for you at this time of your life. Unfortunately, our world as we see it, is full of ASS-HOLES who have no clue at what it means to be nice. They know nothing but evil, and evil lurks within their sad, sad souls.

If there’s anyway for you to avoid reading such garbage, then do so. Don’t allow yourself to be drawn into their insensitive, low life approach, and instead, just delete it immediately. They feed off of their own negative energy, and when they succeed at injecting the vunerable with their nastiness, they gain that much more negative energy.

Last but not least, picture this person(s) as an ant, and just squish them out of their misery! Ants are worthless and so are these nasty, mean people.

Your’s Truly,
Sara

By: Brandi

Brandi — Wed, 03 Nov 2010 18:21:25 +0000

I think I speak for all the parents reading this that there is no way we can even imagine the pain you and your family are in. Just thinking about my child in Ella’s place is almost too much to bear. You have to live it every day. I would like to see one person who can endure that with complete grace and ease. We have all developed a caring for Ella through your blog and that is because you have been so open with your feelings and emotions. Thank you for that.