Ella has been in the hospital now for four months. When I stop and really think about this, it just amazes me what she has been through, what all of us have been through, and that we’re just now getting a chance to go home and start her long rehabilitation and new life. Ella was [...]
This girl is awe inspiring! To watch her progress over the past three weeks, since she has emerged from an almost three month long coma, is to see firsthand what incredible strength and determination children have. I have never doubted their ability, to both understand complex issues and to problem solve, I have seen it [...]
Most of friends and family know that Ella wants to be a scientist when she gets older. And the past few days I have been telling her about famous scientists that had disabilities like the ones she’ll have, but that they wanted to achieve their dreams so bad, they never let those struggles get the [...]
She gets frustrated when she needs her diaper changed. She kicks her legs in all directions, hoping to make contact with the body, that is attached to the cold hands, that are currently tearing away her last bit of dignity. She says she gets embarrassed, and I can’t imagine how she couldn’t. She’s seven, not [...]
Deb here. I’m here for my parent shift and to hang out with ‘The Littles’ for the day. When I arrived earlier today to relieve Glen, he had her laughing and smiling; all great things to see and recognize the progress that Ella is making. Let me first THANK all of the nurses, doctors and [...]
As positive as the last couple of weeks have been, I want to make sure that I keep myself grounded in reality, and all of you as well. There is no “miracle” happening here, Ella is not awake because she has been blessed. Alycia and I had a meeting with the doctors and the rehabilitation [...]
My daughter’s first words after returning from the darkness of a silent, three month, coma. “I Love You” Tell me this isn’t a girl worth loving, with every ounce of your being. I heard my daughter speak today, after preparing myself to never hear her incredible voice again, except on home movies and audio recordings. [...]
Could be worse, could be Christmas at USPS and we’d be sorting letters all night in exchange for sleeping in the warehouse. Ella is doing so great, so much so that the doctors would like here to immediately go from radiation treatment to extensive rehabilitation. She is getting stronger every day; today she was lifting [...]
For almost three months now, Ella has been in a coma, following the removal of a rare and cancerous brain tumor. About ten days ago, she began opening her eyes for several hours a day. Then last week she started shaking her head back and forth and moving her legs. She is now smiling and [...]
